Documentary Makers Expose Horror for New Zealand Woman Living with Cruel Genetic Disorder

news.com.auShe lives in the dark with a blindfold over her eyes and headphones over her ears.

Sunlight and sound are too much for her fragile body.

A cruel genetic condition makes it impossible for her to use her voice and incredibly painful to move her limbs. She loves hugs but can’t hug back because of the agony it causes.

And her condition will only get worse.

New Zealand woman Gina, whose full name has been withheld, is in her mid 40s. She’s been suffering like this in a dark, silent room for more than a decade. The worst part: doctors don’t know exactly what’s wrong with her.

Gina has told her story for the first time to documentary makers, revealing she has nothing left to live for and just wants to die. The problem is, her government won’t let her.  Read more